Interview and words by Rinki Saha Edited by Laurie Herviou and Lucie Yammine How widespread is the BCH network? I am very proud to say that when I started in 2017, it used to be a small organization. But right now, we have a BCH Cancer support group with patients from all over the world sharing experiences and providing each other with help and advice to cope with this disease. For instance, we have people from the US, India, UK, Indonesia, Europe, Africa, Bangladesh, Pakistan reaching out for scientific counseling, advice & guidance and I provide it all in addition to connecting them to our other BCH survivors/patients for further emotional support & strength. Since 2018, I have conducted more than ~300 awareness sessions (virtual or in-person)/community outreaches/screening camps mostly in the US & India but now branching out to other countries through our Ambassadors and BCH Chapter Directors conducting outreaches worldwide & spreading across the word. Our upcoming plan includes village adoption in Africa and Indonesia. How could we prevent the early onset of breast cancer?
The breast cancer patient data from India show a 60% survival rate, which does not portray the real data. In reality, many undiagnosed women are dying in rural parts of India. We cannot prevent directly the early onset, what we can do is early detection which could start from 16 years of age. This early detection could be simply done by self-checkups. What are your long-term plans? We plan to expand the awareness and screening program towards other types of cancer and continue providing help at the grass-root level. Apart from that, I want to reach the deepest part of India and adopt more and more villages to help cancer patients. Another dream project for me is to create a worldwide database focusing on the underprivileged sectors to get access to hospitals and resources to provide subsidized cancer drugs and treatment. How can members of INet-NYC help you? We from BCH are always looking for volunteer scientific writers to summarize review articles about the newest scientific discoveries on breast and other types of cancer. These reviews can provide important information about the critical stages of different cancers and provide the latest scientific development to the patients who are motivated to know the complicated pathways and molecules involved in the disease progression. Other than that, if someone wants to volunteer for the outreach program of breast & other cancer awareness, we can provide them with all the small details and help them work on the cause. There will be no time restriction, as it is going to be volunteer work, you can spend as much time as you want but take accountability to help anyone reaching out, navigating them towards us, and staying in the loop. We would like to thank Dr. Lopamudra Das Roy for taking the time to share her awe-inspiring story with INet NYC. Useful Resources for Breast Cancer https://www.breastcancerhub.org/ https://www.breastcancerhub.org/about-breast-cancer https://www.cancer.org/cancer/breast-cancer.html https://www.nationalbreastcancer.org/breast-cancer-facts
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